"Working with Animals: Animal Testing, BioControl & Ethics - What are our Options?"

John is a parent of adult twins who both have a rare genetic disorder, Alpha-Mannosidosis. He has a long history as a volunteer and as a paid worker in disability services and related advocacy agencies. He is enthusiastic about the use of modern technology to reduce isolation and improve the health of those affected by rare diseases. John is on the Board of several local and international rare disease and advocacy organisations.